The early recognition and treatment of amyloidosis in order to minimise the effects of decline in health. Our focus is therefore on the improvement of diagnosis and the treatment of patients with amyloidosis. In addition, we offer information to patients, physicians and other individuals involved.
You can read here how you can support us financially.
Who we are
The Groningen Amyloidosis Center of Expertise is a collaboration of various disciplines at the University Medical Center Groningen, engaged in diagnosis and treatment of systemic and localised amyloidosis. The department of Internal Medicine has a coordinating role.
|“Living with hereditary amyloidosis”, an impressive documentary||This documentary tells candidly what it is like to grow up in a family with hereditary amyloidosis with a special contribution from Dr Bouke Hazenberg.||The film was made possible by Pfizer in collaboration with the patient association Stichting Amyloidosis Nederland. They will distribute the film worldwide to (potential) patients and their families as well as to doctors. Production and interview: Volle Maan.||The link for the approximately 30 minute film, with English subtitles, can be found here|
|XVIII. International Symposium on Amyloidosis||4th – 8th September 2022||Option to register from February 15 and from March 1 to submit abstracts||For information visit the website|
|How do we deal with the corona virus at the UMCG (COVID-19)?||On this page you will find all information about how we deal with the corona virus at the UMCG (COVID-19)|
|The International Society of Amyloidosis (ISA) has given recommendations for the management of amyloidosis patients during the COVID-19 pandemic||View the latest version here (April 20, 2020)|
|World Amyloidosis day||View the presentations of the AL amyloidosis webinar on the first World Amyloidosis Day of October 26, 2021.||View the Wordwide actions here.|
|Stichting Amyloïdose Nederland (SAN)||Mark the date June 18, 2022 for the meeting day in the Schakel in Nijkerk. Watch the website or newsletter of the Foundation.||View the presentations held on the Informationday of September 25, 2021.||View the presentations held on the patient meeting day of March 13, 2021.|
|Expertisenetwerk Amyloïdose||December 2019 on-line|