The early recognition and treatment of amyloidosis in order to minimise the effects of decline in health. Our focus is therefore on the improvement of diagnosis and the treatment of patients with amyloidosis. In addition, we offer information to patients, physicians and other individuals involved.
You can read here how you can support us financially.
Who we are
The Groningen Amyloidosis Center of Expertise is a collaboration of various disciplines at the University Medical Center Groningen, engaged in diagnosis and treatment of systemic and localised amyloidosis. The department of Internal Medicine has a coordinating role.
|Telephone nursing consultation hour opened||On Monday between 15:00 and 16:00 and on Wednesday between 10:00 and 11:00 you can ask your questions to Sanne Jelsma, nurse consultant||You can reach her by phone on +31 50 361 29 68 or send a message in mijnumcg.nl||See also our Contactpage|
|“Living with hereditary amyloidosis”, an impressive documentary||This documentary tells candidly what it is like to grow up in a family with hereditary amyloidosis with a special contribution from Dr Bouke Hazenberg.||The film was made possible by Pfizer in collaboration with the patient association Stichting Amyloidosis Nederland. They will distribute the film worldwide to (potential) patients and their families as well as to doctors. Production and interview: Volle Maan.||The link for the approximately 30 minute film, with English subtitles, can be found here|
|4de Multidisciplinair Symposium Systemische Amyloïdose||April 14 2023||Systemic amyloidoses are complex diseases in several areas. Besides the rarity, the diagnosis is complicated and specialized. Various types of precursor proteins, such as free light chains or transthyretin, can form amyloid fibrils that affect various organs to varying degrees. The treatment options are increasing rapidly.
All these aspects will be addressed in the symposium. As in previous editions, an international expert will provide an overview and we will discuss the latest developments. In separate question sessions with experts from different specialisms, the participants can bring in case histories and ask questions about various topics.
|Keep an eye on the website of Doen-Congressen for more information|
|XIX. International Symposium on Amyloidosis||May 26 – 30, 2024||This symposium will be held in the Mayo Civic Center in Rochester, Minnesota, USA||Keep an eye on the website of the ISA or the Mayo Clinic for more information|
|How do we deal with the corona virus at the UMCG (COVID-19)?||On this page you will find all information about how we deal with the corona virus at the UMCG (COVID-19)|
|The International Society of Amyloidosis (ISA) has given recommendations for the management of amyloidosis patients during the COVID-19 pandemic||View the latest version here (April 20, 2020)|
|Stichting Amyloïdose Nederland (SAN)||A new date for the meeting day will follow. Watch the website or newsletter of the Foundation.||View the presentations on the information day of June 18, 2022.||View the presentations held on the Informationday of September 25, 2021.||View the presentations held on the patient meeting day of March 13, 2021.|
|Expertisenetwerk Amyloïdose||December 2019 on-line|