Welcome

The Amyloidosis Center of Expertise (GrACE) is part of the University Medical Center Groningen. The broad expertise that the Center has built up since the 1960s allows us to specialize in early recognition, detection, typing, mapping of organ manifestations, treatment and monitoring of amyloidosis in all its forms. Various medical disciplines work together closely to ensure that patients with (suspected) amyloidosis receive the best care. On this website you can learn about the various types of amyloidosis and treatments, the Center of Expertise, and the latest developments.

Mission

The early recognition and treatment of amyloidosis in order to minimise the effects of decline in health. Our focus is therefore on the improvement of diagnosis and the treatment of patients with amyloidosis. In addition, we offer information to patients, physicians and other individuals involved.


Who we are

The Groningen Amyloidosis Center of Expertise is a collaboration of various disciplines at the University Medical Center Groningen, engaged in diagnosis and treatment of systemic and localised amyloidosis. The department of Internal Medicine has a coordinating role.


News

 

XVIII. International Symposium on Amyloidosis
4th – 8th September 2022
For information visit the website

 

3rd European ATTR Amyloidosis meeting for Patients and Doctors
6 September 15:20 – 15:40: BPC Hazenberg, Organ involvement and Clinical Phenotype in ATTR amyloidosis
6 September 16:10 – 16:30: D Muller and P van der Zwaag, Communication with the family

 

Cardiac Amyloidosis, Regional Online Meetings
UMC Groningen and UMC Utrecht have organized a series of 5 online meetings that are organized regionally by local specialists. During these interactive meetings, case histories are used to discuss how jointly the process of recognition, diagnosis, typing and treatment of cardiac amyloidosis can be optimized.
Target audience: Cardiologists, hematologists, radiologists, clinical geneticists and nuclear medicine physicians
UMC Utrecht; Wednesday, June 23 2021 from 7 pm to 8:45 pm
UMC Groningen; Thursday, June 24 2021 from 7 pm to 9 pm
Erasmus MC; Monday, July 5 2021 from 7 pm to 9 pm
Amsterdam UMC; Wednesday, July 7 2021 from 7 pm to 9 pm
Maastricht UMC; Tuesday, September 14 2021 from 7 pm to 9 pm
You can here view the regional programs and register free of charge for the region and specialists of your choice

 

3rd Multidisciplinary Symposium Systemic Amyloidosis 2021
On Thursday 11 November 2021, the 3rd Multidisciplinary Symposium Systemic Amyloidosis will be organized at Van der Valk, Houten, The Netherlands.
For further information see Doen-Congressen.
How do we deal with the corona virus at the UMCG (COVID-19)?
On this page you will find all information about how we deal with the corona virus at the UMCG (COVID-19)

 

The International Society of Amyloidosis (ISA) has given recommendations for the management of amyloidosis patients during the COVID-19 pandemic
View the latest version here (April 20, 2020)

 

Stichting Amyloïdose Nederland (SAN)
View the presentations held on the patient meeting day of March13, 2021.

 

Expertisenetwerk Amyloïdose
December 2019 on-line