Amyloidosis general
Dutch guidelines for Amyloidosis diagnosis: under development.

Guide for identifying amyloidosis
By: Hazenberg BPC and Nienhuis HLA. Amyloidosis Expertise Center
Published: 2019

Subcutaneous Abdominal Fat Aspirate collection protocol.

Amyloid nomenclature 2020: recommendations by the International Society of Amyloidosis (ISA) committee.
Published by: International Society of Amyloidosis (ISA) nomenclature committee
Published: 2020

AL amyloidosis
AL amyloidosis quality standard module
At the request of the Amyloidosis Netherlands Foundation, the VSOP (the national umbrella organization for rare and genetic disorders) has determined in collaboration with medical experts what constitutes good care for amyloidosis.

Dutch guideline for treatment of systemic AL amyloidosis.
Published by: Nederlandse Vereniging voor Hematologie
Published: 2020

Guidelines on the diagnosis and investigation of AL amyloidosis
Published by: British Committee of Standards in Haematology
Published: 2015

Guidelines on the management of AL amyloidosis
Published by: British Society for Haematology
Published: 2014

The treatment of AL amyloidosis in the Netherlands in 2013
Published by: HOVON Working Group on Multiple Myeloma
Published: 2013

New criteria for response to treatment in immunoglobulin light chain amyloidosis based on free light chain measurement and cardiac biomarkers: impact on survival outcomes
Published by: International Society of Amyloidosis Consensus Panel
Published: 2012

Revised prognostic staging system for light chain amyloidosis incorporating cardiac biomarkers and serum free light chain measurements.
Published by: Kumar S, Dispenzieri A, Lacy MQ, Hayman SR, Buadi FK, Colby C, et al.
Published: 2012

International Myeloma Working group guidelines for serum-free light chain analysis in multiple myeloma and related disorders
Published by: International Myeloma Working Group
Released: 2009

Definition of organ involvement and treatment response in immunoglobulin light chain amyloidosis (AL): a consensus opinion from the 10th International Symposium on Amyloid and Amyloidosis.
Published by: Gertz MA, Comenzo R, Falk RH, Fermand JP, Hazenberg BP, Hawkins PN, et al.
Published: 2005

Local AL amyloidosis
Laryngeal Amyloidosis: localized versus systemic disease and update on diagnosis and therapy.
Published by: Bartels H, Dikkers FG, Lokhorst HM, van der Wal JE, Hazenberg BPC. Expertisecentrum Amyloidose
Published: 2004

Long-Term Results of Conformal Radiotherapy for Progressive Airway Amyloidosis.
Published by: Truong MT, Kachnic LA, Grillone GA, Bohrs HK, Lee R, Sakai O, Berk JL. Boston Medical Center.
Published: 2011

Hereditary ATTR amyloidosis
GrACE guidelines for diagnosis and treatment of hereditary ATTR amyloidosis
Written by: Hazenberg BPC, Nienhuis HLA. Amyloidosis Expertise Center
Published: 2020

Early diagnosis of ATTR amyloidosis through targeted follow-up of identified carriers of TTR gene mutations
Published by: Conceicao I, Damy T, et al.
Published: 2019

First European consensus for diagnosis, management, and treatment of transthyretin familial amyloid polyneuropathy
Published by: European Network for TTR-FAP (ATTReuNET)
Published: 2016

Recommendations for presymptomatic genetic testing and management of individuals at risk for hereditary transthyretin amyloidosis
Published by: European Network for TTR-FAP (ATTReuNET)
Published: 2016

ATTR cardiomyopathy
Dutch amyloid cardiomyopathy guidelines are under development.

Nonbiopsy Diagnosis of Cardiac Transthyretin Amyloidosis
Published by: Gillmore JD, Maurer MS, et al.
Published: 2016

AA amyloidosis
Causes of AA amyloidosis: a systematic review
Provides a detailed overview of diseases associated with AA amyloidosis and is also a guideline for a diagnostic approach for a patient where AA amyloid has been found.
Published by: Brunger AF, Nienhuis HLA, Bijzet J, Hazenberg BPC. Amyloidosis expertise center.
Published: 2019